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run carrie run! carrie siu butt, running against dystonia skip to content why i run dystonia my blog ← older posts april 4, 2018 posted on april 3, 2018 | leave a comment happy 12th year to me. yet another year as part robot in the books. one of my co-workers recently renamed me carrie siu bot and while it is funny, i truly do live my life as a “bot” – making sure i am charged and fully operational for maximum output! my growth is always one to reflect on. to appreciate. to smile with gratitude. i went to church on easter sunday and was reflecting on that sunday pre-surgery asking god to get me through the brain surgery. fast forward 12 years and how quickly i forget to thank god every morning for the miracle he has given me. i am more confident now in saying i am disabled. after 30 years of living with a rare disease, i have accepted. with acceptance comes peace. once i got to a state of acceptance, i am okay introducing myself as someone who is disabled. i always thought i had to work a little harder, be a little better than a “normal” person to prove that disabled people can too be successful. i don’t think that anymore. i am just carrie, doing the best i can do, being the best i can be everyday. i recently started taking a mindfulness course and every morning i take 10 minutes and focus on what is good in my life. as part of that practice i remind myself that i am truly living a miracle. despite having 2 surgeries – 2 new batteries in the course of 10 months, i still believe that dbs has been my miracle. so today, i reflect on what i have today, what i had in the past and can only think positively about the future. the one thing i know for certain through this crazy part robot experiment, is that i am so thankful everyday for my family, my tribe and the miracle of modern science that i am able to be a spokesperson for such a rare disease and an advocate for medical research. advertisements leave a comment posted in blog june 3, 2017 posted on june 3, 2017 | 1 comment new city, new job, new apartment, dying battery!! i try to balance the good and the bad of being part robot/terminator. the good is that i run, i work out, i kick major butt…the bad – a declining battery. athough i have never had children, i compare life with a dying battery with childbirth, it’s a painful process but when you get better you forget what you went through because you are so happy! but here we are turning 42 with an almost dead battery. it’s been super hard. my eyes are bad, i get headaches and i sleep alot….like alot!!!! and sadly last week had to stop working out… because i am stronger than i was several years ago, i have been very open about everything in my new life and everyone has been so understanding. i tend to put so much pressure on myself to be the best, so to be reassured that you are already at your best has been truly wonderful! for that i am so grateful! piece of me wants to be sad and feel sorry for myself but then the intelligent part of me reminds myself that this is going to be fixed very, very soon! and that i will be back on the training plan! last night i told myself this is the universe giving me a very long period to rest. because when i get my new battery i will be coming back stronger and better!!! the lesson learned from all of this – don’t let your battery get so drained since it affects all aspects of your life, so go see your doc and get it checked! i’ll be back soon…better and stronger! 1 comment posted in blog march 8, 2017 posted on march 8, 2017 | leave a comment ouch, has it been that long since i have reached out and written…life, gets in the way so often. so, last year was a whirlwind, train, train, train and 2017 hasn’t brought the discipline i wished i had last year. the 4:30am runs, the endless miles and i am embarrassed to say that i have likely logged less than 15 miles all year! but that’s okay. this is life. we never know what is going to be, we never know what that next day brings. i often think of life with dbs no difference than life in general. it happens, good and bad. realizing your battery will die sometime this year when you had all these trips planned, moving to a city, starting a new job can definitely overwhelming. the first thing that i always do when i realize the time is coming near is to say when can i squeeze this surgery in. then i stop, pause, meditate and realize that getting a battery change is a forced pause, a reset, a new burst of energy, a way of remembering how lucky i am. it’s been almost 11 years since the day that i had my entire life change and i will try and run 11 miles on april 4, because i can and because it reminds me how lucky i am. if i can’t do 11, i will still do what i can, because my life is truly a miracle. i will break down, i will be overwhelmed with emotions, because i still remember april 4, as clear as today. i remember the smell of the drill in my skull, i remember the jokes, i remember promising my team if i was ever so lucky i would run a 10k, ha! and look at me today over 10 halfs and 1 full and so many more to go! so as much as some plans will be cancelled in 2017, i always have to remember the big picture. i am an athlete, a runner, who everyone couple of years needs to get a battery change and you know what that’s okay. plans will always get cancelled, things will happen and i remind myself that’s the story of life. leave a comment posted in blog january 1, 2017 posted on january 1, 2017 | leave a comment new day. new year, new chapter! for the last years of my life, i always start with – i want to lose 10 lbs….this is the first year that i can truly say the quest for abs didn’t make the list. for my new chapter aka the new year, i decided that these are the things i would like to focus on: be fit. be athletic. be strong. sleep more be more social in real life and not on the phone read daily meditate consistently stretch more keep my diet clean as possible without depriving myself practice daily gratitude laugh more these all seem easy but they really aren’t. every day will be a new page, a new chance to work on these goals. i am working on my race schedule, but if my dystonia and my batteries work in my favor, i plan on running the lululemon half in vancouver and the nyc marathon. 2017 is about less races and more quality training. it is less about the race bling and more about the effort and the bucket list races. i am always evolving into a better me and i am about to embark on an even bigger adventure, announcement soon! so in 2017, it is less about “dystonia sucks” and more about appreciating the life that i was given, the life that i lead and those that i inspire through being me. i truly believe that if i was “normal”, i would be a different me, but you know what after a long, long road, i have come to appreciate and enjoy this me! to writing your new chapter! leave a comment posted in blog tagged 2017 , dystonia , fit 2016 posted on december 17, 2016 | leave a comment this…just this…pause for a second and remember i have dystonia. life’s lessons. every year i vow to post more, to write more, to share more and every year life gets in the way. one thing is certain though, i always write a year in review at the end of the year and a year of resolutions in the new year, so 2016 you rocked my world! for 2016, i had set a big hairy audacious goal, i’ll let you the reader tell me if i succeeded, i ran: january – disney half january – miami half may – brooklyn half july – chicago half september – philly half october – halloween half i had one more to do but life got in the way and just couldn’t make that race. but 6! yes 6, i am so proud of myself. prior to this year, i had run a total of 5 halfs! i am not without saying thanks to my tribe, my run squad, my tribe of girls that what’s app daily about what workout or run we should do today. i am beyond grateful to all my friends and family that come on this journey with me. thank you to everyone that supported me on this jou

URL analysis for runcarrierun.org

https://runcarrierun.org/2016/07/11/july-11-2016/
https://runcarrierun.org/comments/feed/
https://runcarrierun.org/2016/07/11/july-11-2016/#respond
https://runcarrierun.org/2018/04/03/april-4-2018/
https://runcarrierun.org/2016/09/18/september-18-2016/#comments
https://runcarrierun.org/2014/08/05/august-5-2014/#comment-3369
https://runcarrierun.org/2017/03/08/march-8-2017/
https://runcarrierun.org/tag/half-marathons/
https://runcarrierun.org/2016/12/17/2016/#respond
https://runcarrierun.org/2016/12/17/2016/
https://runcarrierun.org/tag/running/
https://runcarrierun.org/img_2575/
https://runcarrierun.org/2017/01/01/january-1-2017/
https://runcarrierun.org/tag/disability/
https://runcarrierun.org/2018/04/03/april-4-2018/#respond

Whois Information

Whois is a protocol that is access to registering information. You can reach when the website was registered, when it will be expire, what is contact details of the site with the following informations. In a nutshell, it includes these informations;

Domain Name: RUNCARRIERUN.ORG
Registry Domain ID: D155189477-LROR
Registrar WHOIS Server: whois.godaddy.com
Registrar URL: http://www.whois.godaddy.com
Updated Date: 2018-01-27T19:13:21Z
Creation Date: 2009-01-26T03:20:27Z
Registry Expiry Date: 2019-01-26T03:20:27Z
Registrar Registration Expiration Date:
Registrar: GoDaddy.com, LLC
Registrar IANA ID: 146
Registrar Abuse Contact Email: [email protected]
Registrar Abuse Contact Phone: +1.4806242505
Reseller:
Domain Status: clientDeleteProhibited https://icann.org/epp#clientDeleteProhibited
Domain Status: clientRenewProhibited https://icann.org/epp#clientRenewProhibited
Domain Status: clientTransferProhibited https://icann.org/epp#clientTransferProhibited
Domain Status: clientUpdateProhibited https://icann.org/epp#clientUpdateProhibited
Registrant Organization:
Registrant State/Province: New York
Registrant Country: US
Name Server: NS1.WORDPRESS.COM
Name Server: NS2.WORDPRESS.COM
Name Server: NS3.WORDPRESS.COM
DNSSEC: unsigned
URL of the ICANN Whois Inaccuracy Complaint Form https://www.icann.org/wicf/)
>>> Last update of WHOIS database: 2018-11-04T08:37:30Z <<<

For more information on Whois status codes, please visit https://icann.org/epp

Access to Public Interest Registry WHOIS information is provided to assist persons in determining the contents of a domain name registration record in the Public Interest Registry registry database. The data in this record is provided by Public Interest Registry for informational purposes only, and Public Interest Registry does not guarantee its accuracy. This service is intended only for query-based access. You agree that you will use this data only for lawful purposes and that, under no circumstances will you use this data to (a) allow, enable, or otherwise support the transmission by e-mail, telephone, or facsimile of mass unsolicited, commercial advertising or solicitations to entities other than the data recipient's own existing customers; or (b) enable high volume, automated, electronic processes that send queries or data to the systems of Registry Operator, a Registrar, or Afilias except as reasonably necessary to register domain names or modify existing registrations. All rights reserved. Public Interest Registry reserves the right to modify these terms at any time. By submitting this query, you agree to abide by this policy.

The Registrar of Record identified in this output may have an RDDS service that can be queried for additional information on how to contact the Registrant, Admin, or Tech contact of the queried domain name.

  REFERRER http://www.pir.org/

  REGISTRAR Public Interest Registry

SERVERS

  SERVER org.whois-servers.net

  ARGS runcarrierun.org

  PORT 43

  TYPE domain

DOMAIN

  NAME runcarrierun.org

  HANDLE D155189477-LROR

  CREATED 2009-01-26

STATUS
clientDeleteProhibited https://icann.org/epp#clientDeleteProhibited
clientRenewProhibited https://icann.org/epp#clientRenewProhibited
clientTransferProhibited https://icann.org/epp#clientTransferProhibited
clientUpdateProhibited https://icann.org/epp#clientUpdateProhibited

NSERVER

  NS1.WORDPRESS.COM 198.181.116.9

  NS2.WORDPRESS.COM 198.181.117.9

  NS3.WORDPRESS.COM 192.0.74.9

OWNER

ADDRESS

  STATE New York

  COUNTRY US

  REGISTERED yes

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